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HELP!!!! Was it this bad for everyone in the first year???? Options
Debbie L
#1 Posted : Wednesday, January 29, 2014 8:11:29 AM Quote
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Hi everyone not been on for a while, hope you all had a good xmas. I NEED A WINGE! How the hell my partner is putting up with this I do not know. I am sick to the back teeth of this relentless cycle I seem to be on of falling over and picking myself up. Colds, infections, flares. Not to mention the shocking stress and depression. For 2 days last week I couldn't stop crying. I am I just feeling sorry for myself and need a massive kick up the arse? Sad I'm on Sulfasalazine now and my wee looks like Irn-BruBlushing . Trying to cling on to the hope that this is all going to settle down. I don't know which is worse the flares or the feeling ill on a regular basis! Don't even know if I'm gonna have a job cos they're getting peed off with me having time off. WILL THIS CRAP EVER END????
Angiecha
#2 Posted : Wednesday, January 29, 2014 9:26:21 AM Quote
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Oh hell Debbie - it sounds if you're really having a bad time. Sad

Forgive me but I did snicker a bit at your Irn Bru wee. Blushing

I know from reading other posts that some of the drugs take a while to kick in, and also it's sometimes difficult to establish which are the right drugs in the first place. Some people however have said that when the drugs kick in, it's like a switch and most of the pain is gone all of a sudden - let's hope that is the rule for you.

As for all the other coughs, colds etc. it's our silly immune system that is to blame. Don't know whether good ole vitamin D, C etc might help a weeny bit? Blink

You're right about it being a cycle though, especially as you're getting stressed, a sure winner to bring on a flare (with me anyway).

Really hope you get some relief soon - keep on whinging on here and I (and probably others) will happily commiserate with you.

Sending hugs. Cool

Angie

Be yourself - everyone else is taken. XX
Debbie L
#3 Posted : Wednesday, January 29, 2014 9:39:47 AM Quote
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Cheers Angie. Really feel like I'm hanging on by my finger nails at mo so glad to know you guys are there for me ThumpUp

Debs xxx
Paul Barrett
#4 Posted : Wednesday, January 29, 2014 9:56:07 AM Quote
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Hi Debbie,

From what you say it's possible that you are suffering from actual depression. It got me in the first year too and I am now on anti-depressants. My advice would be to talk to your GP.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Debbie L
#5 Posted : Wednesday, January 29, 2014 12:27:20 PM Quote
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Thanks Paul for your advice. Just been to docs this morning for yet more antibiotics and really wanted to talk about it but she was so rushed and busy I didn't. Sorry to hear that you suffer from depression yourself. I think you're right I am going to have to confront this.

Debs xxx
Paul Barrett
#6 Posted : Wednesday, January 29, 2014 12:40:33 PM Quote
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Confronting it, and recognising that you have a problem, is the first step to recovery. Next step is to talk to your GP and don't be rushed. They need to give you time. And most will once they see you have an issue. My advice is do it soon before it can develop any further.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Little Miss Sunshine73
#7 Posted : Wednesday, January 29, 2014 6:11:51 PM Quote
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Hello,

I too am just about coming up to my first year since being diagonsed and have experienced up and down's although they do not seem as bad a your feeling still. I've been quite lucky that all the medication so far I have reacted well on but I've also got a good team and doctor behind me.

As previously said, go back to your doctor and don't let her rush you this time, its important she listens to you BigGrin Have you got a team at the hospital you can call to see if they can help?

I also find that if I have a slight cold or virus it can effect the way I feel and I can ache more.

I've just finished a course of B12 injections as I was found to be B12 deficent. Have your bloods been check recently?

You don't need a kick up the arse & its ok to feel sorry for yourself... There is a lot going on BigGrin

Louise.
anne_t
#8 Posted : Wednesday, January 29, 2014 6:45:58 PM Quote
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Hi Debbie,
Please make an appointment as soon as you can, with your Doctor or Practice Nurse. Tell the receptionist that it may
need to be a double time slot. At our Drs there is a sign to say "one problem only per appointment". Is this normal?
Depression in the 1st. few years is almost as routine as the diagnosis of RA. Not compulsory!! but very common.
Genle hugs
Anne
jewelsh
#9 Posted : Wednesday, January 29, 2014 7:22:05 PM Quote
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Hi Debbie

Sorry you are feeling so bad at the moment The first year or so is tough and it's so hard to explain to people how you are feeling without sounding as if you are constantly moaning-Which it is ok to do!!!

How long have you been on Sulphasalazine? I found that in itself caused depression for me and I only lasted 6 months on it for that reason Of course that doesn't necessarily mean it is the same for you but worth a mention The whole RA thing is a depressing business and you really do nee to talk to somebody soon

Hope you will be feeling more on top of things soon

Hugs
Julie x
lisamcb
#10 Posted : Wednesday, January 29, 2014 7:28:49 PM Quote
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Hi Debbie

Please do not be too hard on yourself and whinge away - it is much needed. Please get yourself back to your GP and get the tine you deserve on a consultation.

I am coming up for my first year since diagnosis and what a roller-coaster it's been, I was offered anti-depressants at Christmas as my mood had reached an all time low. However my GP is reluctant to prescribe more meds and is trying to get me an appointment with a Therapist for some CBT - that is another story.

I think how you are feeling mirrors what myself and a lot of us do and when we are feeling so ill it does affect our mood too. I am sorry you are worrying so much about your work as you wouldn't be taking the time off if you really didn't need to. Can you talk to your Employer and are they sympathetic?

Please let us know how you are getting on - sometimes it feels like an uphill struggle but your partner will be worried about you. My husband has had to take on a lot more housework since I've been diagnosed (which is probably no bad thing).

Sending kind wishes your way.

Lisa
Paul Barrett
#11 Posted : Wednesday, January 29, 2014 10:31:38 PM Quote
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lisamcb wrote:
Hi Debbie
However my GP is reluctant to prescribe more meds and is trying to get me an appointment with a Therapist for some CBT - that is another story.
Lisa


I really recommend CBT. It helped me de-link my mood from my pain levels
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
suzanne_p
#12 Posted : Thursday, January 30, 2014 12:06:08 PM Quote
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hi Debbie,

i was in a terrible state when i was diagnosed,

went into shock so much i lost over half a stone in a week and i was eating,

i think you need to go to see your GP if you are feeling very low, a lot of people have to take an anti-depressant i think they can go hand in hand with a chronic condition.

it is so much easier if you have a good support system around you as well, my Rheumy Nurse is like a friend to me now she was absolutely fantastic at the start and still is.

i also have a great GP who i run too,

you could also try phoning the NRAS Helpline, i think they can link you up with someone in your position, not totally sure but you could always ask .. and they do listen to you.

once your under control life does get easier, i now don't think of my RA much .. i know it's in the back ground and always will be but i don't feel it's the threat it was once.

reach out to all while you feel like this.

Suzanne
Paula-C
#13 Posted : Thursday, January 30, 2014 4:36:33 PM Quote
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Must agree with what everyone else said about seeing your GP, do book a double appointment and then you won't feel rushed. I'm afraid that depression and RA do go hand in hand. If you are in a better frame of mind you will be able to cope with RA better. When we feel down everything seems so much worse.

RA is not a one pill suits all illness I am afraid. Everyone is different in what combination and dose of drugs they need. It sometimes take fine tuning to get it right. That's why we are overseen by consultants and not GP's when it comes to prescribing RA drugs. It is such a complexed illness to treat, but you will get there, just hang on in.

I would ring NRAS up and they could get volunteer to ring you up for a chat. Someone that understands what you are going through at the moment.

Sending you a big gentle hug.

Take Care
Love Paula xx
gogs
#14 Posted : Thursday, January 30, 2014 5:15:32 PM Quote
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Hi Debbie,

Not sure where you are up to now (I haven't been responding due to my own feelings), but I do
hope that you are at least someway to feeling better.

From your initial comments it did sound as if you might be a bit depressed - but who wouldn't, this is not
an easy road to walk and we have a hard battle at times even getting fed up with ourselves.

Please keep us up to date with how you are feeling, bounce your thoughts onto us and lets see if we can be of help.

Gogs xx
Debbie L
#15 Posted : Friday, January 31, 2014 9:06:33 AM Quote
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BIG BIG BIG thank you to everyone for your support. Knowing you are there is amazing and I don't think I could do this without you. I am going to make an appt with a doctor today to get this crushing depression sorted. I can't carry on feeling like I want to cry at the drop of a hat.

Lots of love 'n' hugs
Debs xxx
Kathleen_C
#16 Posted : Friday, January 31, 2014 2:00:30 PM Quote
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Hi Debs,

You are doing the right thing, making an appointment with your GP. Hopefully he/she will be able to advise and help you with how you are feeling. I think the mental aspect of coping with RA are underestimated, and not addressed as they should be. There seems to be lots of help re the obvious physical problems, but not with the effect RA has on our moods/emotions etc.

Take care,

Kathleen x

gogs
#17 Posted : Friday, January 31, 2014 3:35:10 PM Quote
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I endorse everything Kathleen says, The low mood, the weariness, the despair and the feeling that nothing will ever be the same again - IS DEPRESSING!!!

You shouldn't have to fight to get recognition for your depression but sadly without you fighting for yourself, it wont get noticed.

Please care and keep talking to us.

Love

Gogs
xxxSmile
Debbie L
#18 Posted : Friday, January 31, 2014 8:54:00 PM Quote
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Hi everyone, just an update, I did manage to see a doctor and she recognized that i have depression. It was a hard, humiliating experience for me to admit defeat but I needed to do it and glad I did.
Again thank you so much to everyone for your support. I really don't know if I would have seen a doctor without your strength. She prescribed me some anti-depressants and was very supportive and reassuring.

Lots of love
Debs xxx
lisamcb
#19 Posted : Friday, January 31, 2014 8:59:08 PM Quote
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Hi Debbie

Thanks for letting us know you got your appointment but please don't think you have been defeated as it is a very hard and brave step admitting you need some help in the first place. Please keep in touch and let us know how things are going and if you need a chat or advice drop us a wee note.

Take care.

Lisa x
Kathleen_C
#20 Posted : Friday, January 31, 2014 10:29:17 PM Quote
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Debs, you are not defeated - in fact you have been very strong in telling your GP how low you feel. You have taken a very positive step and I hope you can be kind to yourself until things improve. There is light at the end of the tunnel.

Take care,

Kathleen x

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